Determinants and consequences of the transition to adulthood for adolescents with hemophilia
(NCT02866526)

Progress

Inclusions quantitative phase closed on 02/27/2021
Inclusions qualitative phase closed on 06/14/2021
Finalized analyses
Article published on 12/08/2023

Presentation and objectives

Assess the quality of the transition from adolescence to adulthood for young people living with hemophilia and identify the determinants of a successful transition for young people living with hemophilia.

Persons concerned
Type of data collected
(*data excluding FranceCoag)

Adolescent aged 14 to 17 or young adult aged 20 to 29 with severe hemophilia

Adherence to therapy Adherence to medical follow-up

Regulatory approvals
Information note

CPP agreement
(May 05, 2017)

NI Adults
NI Children
NI Parents

Project sponsor (financier)

Assistance publique des Hôpitaux de Marseille (DGOS: PREPS-15-000597, 2016)