Governance
Organisation
FranceCoag is governed by bodies that bring together representatives of its partners. It is overseen by a Steering Committee, supported by an Executive Board, an operational coordination centre and a Scientific Committee. The way these bodies work is set out in a governance charter.
Given the missions and scope of FranceCoag and of the MHEMO network, their scientific steering is a forum for discussing scientific issues common to all bleeding disorders: all FranceCoag missions (epidemiology, research, health and drug safety surveillance) are part of the missions of the MHEMO network. A single joint MHEMO–FranceCoag Scientific Committee was therefore appointed in 2020.
Governance charter
The governance charter sets out the composition, responsibilities and working procedures of each FranceCoag body, and how they interact. It is appended to the agreements signed between the lead institution (AP-HM) and each participating institution, and to the agreement between AP-HM and the French Ministry of Health.
Read the governance charter (PDF, in French)
Scientific leads
Prof. Hervé Chambost
University Professor – Hospital Practitioner (PU-PH); Head of the resource and competence centre for inherited bleeding disorders (CRC-MH); Head of the Department of Paediatric Haematology, Immunology and Oncology, La Timone Hospital, AP-HM, 13005 Marseille, France
Phone: +33 4 91 38 67 84 – herve.chambost@ap-hm.fr
Prof. Pascal Auquier
University Professor – Hospital Practitioner (PU-PH); Head of the Department of Epidemiology and Health Economics, AP-HM; Director of the CEReSS research unit (EA 3279), Aix-Marseille University, Faculty of Medicine, 27 boulevard Jean Moulin, 13005 Marseille, France
Phone: +33 4 91 38 47 44 – pascal.auquier@univ-amu.fr
Coordination centre
Assistance Publique – Hôpitaux de Marseille (AP-HM)
francecoag@ap-hm.fr
- Prof. Pascal Auquier, scientific coordination – +33 4 91 38 47 44
- Prof. Hervé Chambost, scientific coordination – +33 4 91 38 67 84
- Dr Clémence Tabélé, pharmacist epidemiologist, coordinator – +33 4 91 38 47 44
- Mohamed Boucekine, coordinating statistician – +33 4 91 38 47 44
- Romain Voltzenlogel, data manager – +33 4 91 38 47 44
Regional clinical research associates
- Vincent Dalibard – Lille, Amiens, Annecy, Besançon, Chambéry, Dijon, Grenoble, Le Kremlin-Bicêtre, Lyon, Marseille, Martinique, Nancy, Nice, Reims, Réunion, Strasbourg – +33 7 87 32 27 68
- Sonia Saichi – Paris-Necker, Brest, Caen, Clermont-Ferrand, Le Chesnay, Le Mans, Montmorency, Paris-Cochin, Rennes, Rouen, Saint-Étienne – +33 1 44 49 57 58
- Djamel Kherfellah – Bordeaux, Limoges, Montpellier, Nantes, Poitiers, Toulouse, Tours – +33 5 56 79 48 79
Executive Board
| Member and role | Institution / unit |
|---|---|
| Roseline d’Oiron – reference centre lead, representing the haemophilia reference centre coordinator (CRH) | AP-HP, Le Kremlin-Bicêtre Hospital |
| Caroline Oudot – representative of bleeding disorder centres | Toulouse University Hospital |
| Fabienne Genre-Volot – representative of bleeding disorder centres | [CHECK] Dijon University Hospital, CRC-MH, Clinical Haemostasis Unit |
| Nicolas Giraud – representative of the French Haemophilia Society (AFH) | AFH |
| Pascal Auquier – FranceCoag scientific lead | AP-HM & EA 3279, Public Health Laboratory |
| Hervé Chambost – FranceCoag scientific lead | AP-HM, CRC-MH, Paediatric Haematology |
| Clémence Tabélé – project manager | AP-HM & EA 3279, Public Health Laboratory |
| Vincent Dalibard – clinical research associate | Lille University Hospital |
Steering Committee
| Member and role | Institution / unit |
|---|---|
| Sophie Susen – MHEMO network lead; coordinator of the von Willebrand disease reference centre (CRMW) | Lille University Hospital |
| Yessim Dargaud – reference centre lead, representing the haemophilia reference centre coordinator (CRH) | Hospices Civils de Lyon |
| Roseline d’Oiron – reference centre lead (member of the CRH) | AP-HP, Le Kremlin-Bicêtre Hospital |
| Paul Saultier – representing the coordinator of the platelet disorders reference centre (CRPP) | AP-HM, Department of Paediatric Haematology & Inserm, INRAE, C2VN, Aix-Marseille University |
| Caroline Oudot – representative of bleeding disorder centres | Toulouse University Hospital, CRC-MH |
| Fabienne Genre-Volot – representative of bleeding disorder centres | Dijon University Hospital, CRC-MH, Clinical Haemostasis Unit |
| Nicolas Giraud – representative of the French Haemophilia Society (AFH) | AFH |
| Fabrice Pilorge – representative of the French Haemophilia Society (AFH) | AFH |
| Stéphanie Sahu-Depeigne – representative of the Directorate General for Health (DGS) | French Ministry of Health |
| Anne-Sophie Lapointe – representative of the Directorate General for Healthcare Provision (DGOS) | French Ministry of Health |
| Pascal Auquier – FranceCoag scientific lead | AP-HM & EA 3279, Public Health Laboratory |
| Hervé Chambost – FranceCoag scientific lead | AP-HM, CRC-MH, Paediatric Haematology |
| Émilie Garrido Pradalié – AP-HM Health Research Directorate | AP-HM |
| Philippe Leca – AP-HM Digital Services Directorate | AP-HM |
Scientific Committee
| Member and role | Institution / unit |
|---|---|
| Yessim Dargaud – coordinator of the haemophilia reference centre (CRH) | Hospices Civils de Lyon, Clinical Haemostasis Unit |
| Sophie Susen – coordinator of the von Willebrand disease reference centre (CRMW) | Lille University Hospital, Clinical Haemostasis Unit |
| Paul Saultier – coordinator of the platelet disorders reference centre (CRPP) | AP-HM, Department of Paediatric Haematology & Inserm, INRAE, C2VN, Aix-Marseille University |
| Sandrine Meunier – representative of bleeding disorder centres | Hospices Civils de Lyon, CRH & CRC-MH, Clinical Haemostasis Unit |
| Brigitte Pan-Petesch – representative of bleeding disorder centres | Brest University Hospital, CRC-MH, Clinical Haemostasis Unit |
| Jenny Goudemand – representative of the CRMW | Lille University Hospital, Clinical Haemostasis Unit |
| Annie Harroche – representative of the CRMW | AP-HP, Necker Hospital, F. Josso Haemophilia Treatment Centre |
| Sophie Voisin – representative of the CRPP | Toulouse University Hospital, Haematology Laboratory |
| Pascal Auquier – FranceCoag scientific lead | AP-HM & EA 3279, Public Health Laboratory |
| Hervé Chambost – FranceCoag scientific lead | AP-HM, CRC-MH, Paediatric Haematology |
| Olivier Christophe – representative of an accredited research unit (haemostasis) | Inserm UMR_S 1176, Paris-Saclay University, Le Kremlin-Bicêtre |
| Sébastien Lacroix-Desmazes – representative of an accredited research unit (immunology) | Inserm UMR_S 1138, Cordeliers Research Centre, Paris |
| Thierry Calvez – representative of an accredited research unit (epidemiology) | UMR_S 1136, Pierre Louis Institute of Epidemiology and Public Health, Paris |
| Alain Duhamel – methodology expert | Lille University Hospital, EA 2694, Public Health |
| Christine Vinciguerra – representative of Génostase (genetics network) | Hospices Civils de Lyon, Department of Laboratory Haematology |
| Fabrice Pilorge – representative of the French Haemophilia Society (AFH) | AFH |
| Carol Betsch – representative of the French Haemophilia Society (AFH) | AFH |
| Nicolas Giraud – representative of the French Haemophilia Society (AFH) | AFH |
| Aurélien Lebreton – representative of COMETH | Clermont-Ferrand University Hospital, CRC-MH, Haematology Department |
| Yves Gruel – representative of the French Study Group on Haemostasis and Thrombosis (GFHT) | Tours University Hospital, CRC-MH, Haematology Department |
| Guillaume Drugmanne – representative of clinical research associates | Brest University Hospital, Clinical Investigation Centre, Clinical Haemostasis Unit |
| Cédric Hermans – invited international expert | Haemostasis and Thrombosis Unit, Cliniques universitaires Saint-Luc, Brussels, Belgium |
| Philippe de Moerloose – invited international expert | Haematology, Faculty of Medicine, Geneva, Switzerland |