Objective and perceived health status of seniors with moderate or severe hemophilia in France: An ancillary study of the FranceCoag cohort
(NCT05218772)

Progress

Inclusions in progress

Presentation and objectives

Describe the objective and perceived health status (assessed by quality of life) of seniors with moderate or severe hemophilia in France, compared with that of the general French population, which will make it possible to assess the impact of the disease on health status.

Persons concerned
Type of data collected
(*data excluding FranceCoag)

People over 60 with moderate or severe hemophilia

Socio-demographic data
Data on objective health status (chronic diseases other than hemophilia)
Data on perceived health status (quality of life, emotional state, time perspective, stress management)

Regulatory approvals
Information note

CPP agreement
(December 16, 2021)

NI Adults

Project sponsor (financier)

Assistance publique des Hôpitaux de Marseille (ANR Appel à projet générique, 2021)