Epidemiology of severe bleeding (central nervous system or life-threatening) in the cohort of patients included in FranceCoag Before Diagnosis.

Progress

Inclusions closed on 16/03/2022
Analyses finalized on 03/28/2022

Presentation and objectives

The “EHAD” study is part of a DIU dissertation project entitled “Maltraitance de l’enfant : du diagnostic aux aspects médico-légaux” (“Child abuse: from diagnosis to medico-legal aspects”). She is interested in the epidemiology of severe bleeding in people with constitutional hemorrhagic disease (CHD).

Persons concerned
Type of data collected
(*data excluding FranceCoag)

All people participating in FranceCoag who had a bleed before the diagnosis of MHC

Regulatory approvals
Information note

Favourable opinion from FranceCoag’s Scientific Committee
MR004 declared to the CNIL

NI Adults and Parents

Project sponsor (financier)

Dr Meunier Sandrine (Hospices Civils de Lyon)