Identification of HCM patient groups based on substandard health risks, for inclusion in AERAS reference grids

Progress

Closed inclusions
Analysis in progress

Presentation and objectives

Identify a group(s) of patients with a low risk of death at age 25, worsening health or work interruption, so that they can benefit from the AERAS grid when taking out a bank loan requiring insurance.

Persons concerned
Type of data collected
(*data excluding FranceCoag)

All FranceCoag participants

Regulatory approvals
Information note

Favourable opinion from FranceCoag’s Scientific Committee
MR004 declared to the CNIL

NI Adults and Parents

Project sponsor (financier)

French Hemophilia Association (AFH)